Wednesday, May 21, 2014

Family Update

Wes is doing fine.  He's working, etc.  June 4 he will have another MRI and on June 6 we will find out the results.  I'm nervous.  That's our wedding anniversary.   Setting aside the idea of the possibility that bad news will ruin our anniversary celebration.

Week before last (or was it just last week?  I forget), I saw a neurologist.  We are trying to figure out why my legs get so weak and wobbly and shaking.  So she is sending me for an MRI (tomorrow) and to see and neuromuscular specialist who will do further testing (something about an enzyme biopsy, I think).

Last Friday I also had an appointment with a Physical Therapist to find some exercises I could do to relieve my shoulder pain.  I also mentioned my leg issues to her.  She did a work up on me, and come to find out, my pelvis is twisted!  The left side of it, is tilted forward an in.  So. Not. Good.  This might explain my weird left leg issues and much of my back pain as well.  The exercises she gave me to start correcting this issue feel miraculous in the relief they give.

Today I took Eric to see a Pediatric Rheumatologist.  This appointment has been very hard to get and a very long time coming.  She poked and proded and asked a million questions and is sending him for genetic testing, to a cardiologist and to an ENT for an evaluation and to get his lower back X rayed....because she suspects Marfan's Syndrome, or a genetic abnormality in that cluster of connective tissue disorders.  Too early to know for sure yet, but he does have some of the physical traits...just not in a super duper pronounced way.  Learning this possibility, and adding these appointments to my calendar, and imagining the doctor bills has got me very stressed out.  I feel like I have been punched in the gut. 

Maia got her Learner's Permit on Monday, so she is going to have to go to driving school soon, and buy a car soon.  She has to hold her LP for 180 days before she can go for her road test.  I hope she can meet that goal.  It will be a help to have another driver in the family.

Bethany is still dealing with boatloads of anxiety and depression issues....as per usual.  And Ariana is also dealing with some new anxiety and depression issues.  Go figure.

On Tuesday nights our family goes to Gilda's Club, which is a cancer support group.  It is a wonderful community, and there's a group for the kids, a group for me, and a group for Wes.  Just what we need at this time.

I feel very disconnected from my parish.  It is hard to make friends.  I am lonely.  So often I am sick and tired, and I can never do any of the extra things.  Besides, often Bethany needs me to rescue her during Church.  It is a sensory overload for her, and she can only take so much.  This is very difficult.

Next school year Eric and Ariana are going to enroll in High School.  I don't know yet what grade they will be in.  I have a window between June 13 and 25 or so when I can take their records in and get them registered.  I don't know yet what grades they will be in.  Ariana is having loads of anxiety about this change in her life.  Please pray for her.  Eric is too, but he won't talk about it.  He just plays stormy music on the piano.  I am having anxiety and stress about getting their work graded and transcripts made.  Please pray for me. 

Maia plans on getting her GED, and then trying to work more and set aside some more funds, aiming to enroll in community college or UofL in 2015.  

Wes is super busy and content at work, glory to God for that.  He has nightmares about losing his ability to speak.  Please pray for him.

Me?  I am putting one foot in front of the other, but feeling very very much on edge.  This is hard.  This is SO MUCH STRESS on my plate, and there is absolutely nothing in the world I can do about it.  Dear God, please take it.  I don't want it anymore. 

17 comments:

Matushka Anna said...

Praying for you all the time. I wish we were neighbors. <3

Ruth said...

Praying.

lisa s. said...

Oh, Alana! I don't know how you handle all of this, I really don't! You are doing wonderfully with all your responsibilities. I admire you so much.

elizabeth said...

This is so very hard. We are praying daily for you all.

Unknown said...

Continued prayers for all of you. In Christ, Evpraxia

Klidell Radney said...

God bless your family. You are in my prayers.

Michelle M. said...

Continuing to pray for all of you.

Xenia Kathryn said...

Thanks for the update, Alana. You, Wes and your family are in my thoughts and prayers.

So very sorry for the stress!! Sending big hugs from Oregon. Wish I could pop over and give you a meal or something.

Wes Morgan said...

Thanks for all of the updates -- whew! That's a lot of stuff -- so a lot of prayers!

Ο ΓΡΑΦΩΝ said...

Praying for you and your family daily.
Athena

Unknown said...

Tabitha here. You have been especially in our thoughts and prayers today for the MRI. May God give you strength and peace as you wait for the analysis.

ChocolateChipMint said...

Prayers for you. Hope that you are feeling God's grace in your days.

ChocolateChipMint said...

Continuing to pray for you all. Hope you are able to cope with each new day.

ChocolateChipMint said...

How are you all doing? Praying!

monica said...

delurking here to tell you I am praying for you and carry you in my heart. That is about all i can do.

monica said...

delurking here to tell you I am praying for you. I carry you all in my heart. Please keep up the updates, for though I cannot do much, i do pray.

monica said...

Delurking here to say I am Praying for you. Please keep up the updates as you can. I feel so powerless, bu I am praying.